Survey for Stargardt patients

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A charity, which supports people living with genetic conditions, has produced a survey for people with Stargardt disease. 

The survey, produced by Genetic Alliance UK, is looking to find out how the condition impacts those affected, their families and carers in their day to day lives.

It is hoped the responses will help the organisation provide a vital patient voice to the committee deciding whether to license the reproductive technique, preimplantation genetic diagnosis, for couples at risk of having a child with Stargardt disease.

Stargardt disease is also sometimes known as Stargardt macular dystrophy, juvenile macular degeneration, or fundus flavimaculatus.

The survey will close on 14 June 2018. 

Complete the survey here.