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Stay informed with the latest breakthroughs in macular research, emerging treatments for sight loss, and inspiring stories from the people we support. Browse our most recent news and insights below—and sign up to our free monthly enewsletter to never miss an update.
Grandsons cycle 44km for grandma, raising £1,000 to Beat Macular Disease
Posted: Friday 19 December 2025
A grandmother has spoken of her pride after her grandsons, aged just 10 and 12 cycled more than 40km to raise more than £1,000 for macular research on her behalf.
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Macular disease Christmas tree rounds off church’s 2025 fundraising
Posted: Friday 19 December 2025
A Christmas tree with a difference has rounded off a church community’s year of fundraising - putting macular disease in the spotlight.
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“I couldn’t understand why other people weren’t seeing what I was seeing”
Posted: Sunday 16 November 2025
Being the only person to see kittens climbing out of her TV, trees growing inside her house and people sat in her bedroom was an alarming experience for Janet after she was diagnosed with age-related macular degeneration.
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“I get both joy and comfort from painting as someone with a visual impairment”
Posted: Thursday 4 September 2025
Having been forced into early retirement, John has always been determined not to be beaten by macular disease. His career as a civil engineer may have been over sooner than planned, but he has since rediscovered his passion for painting.
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“We’re fundraising because we want more people to know about macular disease”
Posted: Wednesday 3 September 2025
A father and daughter will be running the Great North Run together to raise awareness of macular disease and funds to find a cure.
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“If I can help somebody with macular disease, then that’s my legacy”
Posted: Monday 4 August 2025
Chris has three simple hopes for the future: to continue be able to read for as long as possible, to keep running while his sight still allows him and to welcome new treatments or even a future cure for macular disease.
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"I was determined to get help for my mum"
Posted: Wednesday 28 May 2025
When Ruth was diagnosed with age-related macular degeneration (AMD) last year, it was her daughter Ann who saw it as her mission to find her mum much needed support.
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"Something I never thought I’d achieve"
Posted: Wednesday 28 May 2025
Armaan, who was diagnosed with macular dystrophy when he was 11 years old, took on his first ever marathon in April, to prove to himself that he could achieve something he never thought he would with sight loss.
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“I will not be identified by my macular disease”
Posted: Friday 25 April 2025
From experiencing “sheer hell” in the aftermath of his diagnosis to getting his life back on track, Duncan knows all too well how important a positive mindset has been for adapting to a life with macular disease.
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Friends take on epic mountain challenge to beat macular disease
Posted: Tuesday 1 April 2025
From Yorkshire to Tanzania, two friends who spend their working lives treating people with macular disease are taking on a series of epic mountain climbs in 2025, raising funds to find a cure.
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“I used to cry in the shower – there was so much anger”
Posted: Thursday 13 March 2025
Counselling has been a “lifechanging” experience for Trevor, who hit his lowest point when macular disease began to impact both of his eyes.
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“I'm still really scared of losing what sight I have left”
Posted: Friday 28 February 2025
Kate’s first experience of her rare macular condition happened 16 years ago, when she suffered a bleed in her right eye. It left her with peripheral vision only, though a timely injection halted any further sight loss.
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