Read Sarah’s story about her children, Farrah and George: “A cure would mean everything to us.”
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Latest News

World Geographic Atrophy Day raises awareness of common condition
Posted: Tuesday 5 December 2023
The first-ever World Geographic Atrophy Day today to raise awareness of the condition and the five million people living with it across the globe.

Stargardt pill continues to slow sight loss
Posted: Tuesday 28 November 2023
A drug being trialled as a potential treatment for Stargardt disease has been shown to slow down the rate of sight loss.

"I didn't know if my hallucinations were a manifestation of my grief"
Posted: Thursday 16 November 2023
Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.

“Our son has macular disease, there was a chance our daughter would get it too. We hoped the odds would be in our favour”
Posted: Wednesday 8 November 2023
When George was diagnosed with macular disease at the age of seven, his mum Sarah and dad Ollie knew there was a one in four chance their daughter could be affected too. But, as Farrah wasn’t showing any symptoms, they put the thought to the back of their mind. Until one day, she told Sarah she had kept seeing funny things out of the corner of her eyes.

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