Nurse Looks Into Eyes Of Elderly Patient

Patients reveal communication gaps in diagnosis

Posted: Monday 5 February 2024

Patients have highlighted noticeable gaps in communication when they are first diagnosed with macular disease, or if they are considered at risk of developing the condition.

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An illustrative design showing victorian-era women in the middle of a modern street to suggest an hallucination somebody with Charles Bonnet syndrome might experience

'The more that is known about Charles Bonnet syndrome, the better'

Posted: Thursday 1 February 2024

Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.

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Generic Drug Image

Another new drug offers hope for Stargardt patients

Posted: Monday 29 January 2024

Another drug to potentially treat Stargardt has shown positive results in slowing down the progression of the disease in a recent trial.

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Support group consoling hug

Dedicated group for those supporting people with macular disease launches

Posted: Thursday 25 January 2024

A new dedicated support group for caregivers and those supporting people living with macular disease will launch this spring, recognising their often-overlooked needs.

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'Do the things that make you feel worthwhile'

Posted: Wednesday 24 January 2024

The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.

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Michael Owen prays for a cure for son's Stargardt

Posted: Tuesday 23 January 2024

Michael Owen has brought Stargardt into the spotlight again as he talks about his son's diagnosis.

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‘I feel so incredibly lucky to have had the opportunity to work for such a wonderful organisation’

Posted: Friday 12 January 2024

After nearly a decade of dedicated service as chief executive of leading sight loss charity the Macular Society, Cathy Yelf has announced her decision to retire in 2024.

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Online support for early onset macular degeneration

Posted: Monday 8 January 2024

A new support group for people with early onset macular degeneration – a condition many often confuse with early age-related macular degeneration (AMD) – will launch next month.

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A man counting his money, while writing down calculations. There are four piles of coins, each growing in size, next to a jar of coins.

Podcast mini series shines light on extra financial support

Posted: Tuesday 2 January 2024

Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim?

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Valda Johnston

'I went to help make tea but I stayed for the support'

Posted: Thursday 21 December 2023

For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.

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Professor Mike Cheetham and team

‘We’re hoping our research can lead to potential treatments’

Posted: Wednesday 20 December 2023

A groundbreaking research project is underway, focusing on screening a library of already licensed drugs to potentially treat Stargardt disease.

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Politicians urged to prioritise national eye care plan

Posted: Sunday 17 December 2023

The spotlight was turned on eye health in the Houses of Parliament this month as MPs faced urgent calls to improve NHS eye care services and prevent avoidable sight loss.

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