What to do after a diagnosis

Being diagnosed with macular disease can be distressing and worrying but, with the right information and support, people can cope very well. There are now treatments for some types of macular disease.

It’s also important to remember that, no matter how advanced your macular degeneration is, you will not lose all your sight: macular disease is a condition that affects the central vision only. Peripheral vision is not affected. It’s also worth knowing that macular disease does not cause physical pain.

When learning about a new condition it is important to go at your own pace, but we can help you find out more about macular disease and what steps you can take.

Video: Jane's story and advice

About macular disease

Nearly 1.5m people in the UK have macular disease. It affects people of all ages. Age-related macular degeneration (AMD) is the most common condition.

Newly Diagnosed To-Do List

When you are first diagnosed with macular disease, it can be a shock and you might not know what to do next. You might not even fully understand what your new condition is.

Looking after yourself

Looking after yourself when you have macular disease can be very challenging. Here are some simple tips that might help overcome some of those challenges.

Support for you

We provide free information and support to those with macular disease, along with their family and friends, to help people keep their independence.