‘I didn’t appreciate the longer-term emotional impact of this disease’

Posted: Wednesday 20 March 2024

Jill, a university researcher from County Durham, described how the Macular Society’s Counselling Service gave her the “time and breathing space” to adapt after a diagnosis of an extremely rare form of macular disease.

Find out more

'Talking about it is an opportunity to help people understand more about sight loss'

Posted: Thursday 29 February 2024

Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.

Find out more

An illustrative design showing victorian-era women in the middle of a modern street to suggest an hallucination somebody with Charles Bonnet syndrome might experience

'The more that is known about Charles Bonnet syndrome, the better'

Posted: Thursday 1 February 2024

Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.

Find out more

'Do the things that make you feel worthwhile'

Posted: Wednesday 24 January 2024

The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.

Find out more

Valda Johnston

'I went to help make tea but I stayed for the support'

Posted: Thursday 21 December 2023

For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.

Find out more

"I didn't know if my hallucinations were a manifestation of my grief"

Posted: Thursday 16 November 2023

Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.

Find out more

“You have to try and remain connected and appreciate what you’ve got”

Posted: Thursday 26 October 2023

With lots going on in her personal life in 2017 Geraldine admits she had little time to process the news that she had the early stages of age-related macular degeneration (AMD).

Find out more

Irene

“My white cane is absolutely essential – I wouldn’t be without it”

Posted: Friday 13 October 2023

When Julia and Irene step out of their front doors, they do so with an air of confidence - and it’s all thanks to their white canes.

Find out more

Nick Lancaster. A yellow box sits in the bottom right corner with the National Lottery Community Fund Wales logo in Welsh

“I’ve learned all the skills that I need to try and live independently”

Posted: Wednesday 20 September 2023

When Macular Society volunteer Nick suddenly found himself unable to make a simple cup of tea, he knew he needed help to rediscover an independent life with sight loss.

Find out more

Ann Johnson

Ann, 99, completes milestone walking marathon challenge

Posted: Thursday 24 August 2023

While we have seen our fair share of rain over the last few months, nothing could stand in the way of 99-year-old Ann who has completed her mammoth, walking marathon challenge.

Find out more

Jade Blackledge

Thrill seeker skydives from 14,000ft to Beat Macular Disease

Posted: Friday 18 August 2023

Thrill-seeker Jade can tick off a 14,000ft skydive from her adrenaline-fuelled bucket list after she fearlessly threw herself out of a plane, to beat macular disease.

Find out more

“It’s not about what you can’t do, but what you can do that matters”

Posted: Monday 17 July 2023

From working as a volunteer football coach at one of the Premier League’s top clubs to advising ministers at the heart of Government, Jonathan has never let Stargardt get in the way of his varied career.

Find out more