Friends Lynne, left, and Karen smile to the camera while holding cups of tea.

“We can support each other and that has been quite marvellous”

Posted: Wednesday 17 July 2024

Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.

Find out more

Peter and wife sue posing to camera. Peter standing smiling wearing a light blue shirt, with his arms around wife sue who is sat down wearing yellow spotted dress

“Talking to people who knew what macular was, I knew I wasn’t alone"

Posted: Tuesday 2 July 2024

When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.

Find out more

Nancy looking into the camera with her hands held near her face

"I know my eyesight will change, so I want to live in the here and now"

Posted: Monday 24 June 2024

Nancy assumed her vision changes were just part of getting older. When she noticed blank spots and disappearing words while reading, she thought she needed a new prescription.

Find out more

Tricia Sturgeon smiling

"Volunteering is very fulfilling and it keeps your brain and body active”

Posted: Monday 3 June 2024

When Tricia was diagnosed with macular disease, she already had a support system in place, thanks to her role as a volunteer with her local support group.

Find out more

Anne, left, pictured with John on holiday outside the Anne Frank house museum

'It's very important that I make the best of what I can see and do now'

Posted: Thursday 25 April 2024

John has been creative for as long as he can remember, and is determined to keep doing what he loves, while adjusting to life with sight loss.

Find out more

Jill Barker smiling

‘I didn’t appreciate the longer-term emotional impact of this disease’

Posted: Wednesday 20 March 2024

Jill, a university researcher from County Durham, described how the Macular Society’s Counselling Service gave her the “time and breathing space” to adapt after a diagnosis of an extremely rare form of macular disease.

Find out more

Leah Holroyd smiling with book

'Talking about it is an opportunity to help people understand more about sight loss'

Posted: Thursday 29 February 2024

Leah's journey with Best disease started when she was growing up with her brother Finn, who has the condition. But, even though she knew what it was, her own eyesight was not affected.

Find out more

An illustrative design showing victorian-era women in the middle of a modern street to suggest an hallucination somebody with Charles Bonnet syndrome might experience

'The more that is known about Charles Bonnet syndrome, the better'

Posted: Thursday 1 February 2024

Researchers at Royal Holloway University looking into the effectiveness of different techniques to help manage visual hallucinations are calling for more participants to take part in the first study of its kind.

Find out more

Carol Ozanne smiling into camera

'Do the things that make you feel worthwhile'

Posted: Wednesday 24 January 2024

The loneliness and isolation associated with sight loss can be detrimental to our mental health, but volunteer Carol is on a mission to emotionally lift and encourage others.

Find out more

Valda Johnston smiling into camera

'I went to help make tea but I stayed for the support'

Posted: Thursday 21 December 2023

For more than a decade Valda volunteered with her local support group, despite her initial doubts of being around others with sight loss.

Find out more

Penny Rome smiling

"I didn't know if my hallucinations were a manifestation of my grief"

Posted: Thursday 16 November 2023

Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.

Find out more

Geraldine Kelley in garden

“You have to try and remain connected and appreciate what you’ve got”

Posted: Thursday 26 October 2023

With lots going on in her personal life in 2017 Geraldine admits she had little time to process the news that she had the early stages of age-related macular degeneration (AMD).

Find out more