Janet Burton in mid air as she falls from the sky in a tandem skydive. Her instructor is strapped on top.

“The most thrilling thing I have ever done”

Posted: Wednesday 28 August 2024

Turning 71 became an unforgettable milestone for retired teacher Janet as she plummeted from 12,000 feet, all to raise awareness and funds for macular disease.

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One young white man and one elderly white man sat at a table looking at paperwork together, smiling

AMD added to list of conditions eligible for financial support

Posted: Thursday 1 August 2024

Age-related macular degeneration (AMD) has been added to the list of conditions eligible for additional financial support by the Department for Work and Pensions (DWP). This means benefits such as Personal Independence Payment (PIP) and Attendance Allowance may be easier for people with AMD to access.

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Picture of two Okko Health reps, one white female and one brown male, standing by poster presentation at ARVO

Home-monitoring app boosts patients' understanding of macular disease

Posted: Monday 29 July 2024

A recent study by OKKO Health has revealed significant improvements in health literacy among users of its home-monitoring app.

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Angela Young, a white female in her early 60s in eye clinic shaking hands with consultant ophthalmologist. Both smiling and looking to camera

Ex BBC journalist with AMD launches podcast

Posted: Monday 29 July 2024

A new podcast has been launched by Macular Society member and former BBC journalist Angela Young, who was diagnosed with macular disease at 56.

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"Without the Macular Society, I don’t know what we would’ve done"

Posted: Wednesday 24 July 2024

When Sue’s husband Peter was diagnosed with dry age-related macular degeneration (AMD), it wasn’t just his life that changed – it was hers too.

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Medication spilling out of container

AREDS2 supplements slow sight loss in late-stage dry AMD

Posted: Friday 19 July 2024

New research has found that taking a daily vitamin and mineral supplement can slow the progression of geographic atrophy (GA), an advanced form of dry age-related macular degeneration (AMD).

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Friends Lynne, left, and Karen smile to the camera while holding cups of tea.

“We can support each other and that has been quite marvellous”

Posted: Wednesday 17 July 2024

Two women who joined a global online support group for people with an extremely rare form of macular disease have formed a friendship after discovering they lived just a few miles apart.

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Fitness leader Rosey with her arm aloft wearing a Macular Society fundraising t-shirt. Macular Week posters are in the background

"I want to help create awareness of macular disease first and foremost"

Posted: Thursday 4 July 2024

Rosey, a 67-year-old fitness instructor, turned her exercise classes into a tribute to those living with macular disease as she set the routines to vision-themed music and asked everyone to wear yellow for Macular Week.

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Peter and wife sue posing to camera. Peter standing smiling wearing a light blue shirt, with his arms around wife sue who is sat down wearing yellow spotted dress

“Talking to people who knew what macular was, I knew I wasn’t alone"

Posted: Tuesday 2 July 2024

When Peter was told he had macular degeneration, he found himself overwhelmed with uncertainty and fear. The rapid deterioration of his sight was far worse than he had imagined, and the lack of information and support he received left him feeling ‘abandoned’.

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Female consultant, discussing results with male patient with computer images of results.

Advice for eye injections

Posted: Tuesday 2 July 2024

Being told you need an injection in your eye can come as a shock to many people and leave you feeling anxious and worried. Brian, who has undergone 37 injections in one eye, talks through his experience, offering reassurance.

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Researcher in laboratory with syringe

Radiation treatment could reduce frequency of injections

Posted: Tuesday 2 July 2024

A new study led by researchers from King's College London and King's College Hospital NHS Foundation Trust has shown that radiation could significantly reduce the number of injections needed to treat wet age-related macular degeneration (AMD).

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Ruth Rhydderch

Understanding the role of an ECLO

Posted: Monday 1 July 2024

Navigating a diagnosis of macular disease can be overwhelming, but Ruth Rhydderch, an eye clinic liaison officer (ECLO) at the University Hospital of Wales, explains how her role can make a difference.

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