Mentoring

Macular disease can have an impact on many aspects of people’s lives. This might include employment, social activities and looking after a child with macular disease. Talking to someone who has lived through some of those difficulties can be helpful. The Macular Society has volunteer ‘mentors’ who can advise and support you through their own personal experiences of macular disease.

On this page:

What is a mentor?
Employment mentors
Parental mentors
Could I be a mentor?
How can I use this service?

What is a mentor?

Our mentors have lived experience of macular disease and are able to communicate that experience in a supportive way. Mentoring can be useful in many areas of life including employment, parenting and everyday life, including:

Understanding your sight loss
Strategies to use in the work place
Knowing what your child is entitled to at school and during further education
What university is like for somebody with macular disease

Employment mentors

If you have recently been diagnosed with macular disease, you may be concerned about your job and whether you can continue to work. The Macular Society has employment mentors who can offer advice and information about things to consider to remain in work. Sometimes we can identify a mentor who is in a similar job, and can therefore advise on how they overcame any difficulties they had in the work place. This could include:

Telling your employer about your sight loss
The type of equipment and technology they use
Life hacks for the work place
Experience of the Access to Work scheme
Difficulties that may present themselves, and any solutions

Parental mentors

As part of the support the Macular Society offers parents of children with macular disease, there is a Parents Telephone Support Group.

This support group is a great place for parents of children with macular disease, and parents who have macular disease themselves, to connect and share experiences. There are also parents willing to talk and offer advice to other parents whose child has had a recent diagnosis. Some of the things you might discuss are:

Diagnosis
Prognosis
How to tell the school about your child’s sight loss
What support could be available in school
The emotional impact of diagnosis on the family

Could I be a mentor?

The Macular Society is always looking for people to become volunteer mentors. If you feel you could offer support to another person with macular disease, because of the job you do or any personal experience that you have, why not become a Macular Society mentor?

Our mentoring service is over the telephone and offers support for the length of time that the mentee requires - this is usually one to two sessions.

Find out more information or apply to become a volunteer mentor

Contact Colin Daniels, Working Age and Young Peoples’ Manager on colin.daniels@macularsociety.org

How can I use this service?

If you feel that you need support either with work, parenting or everyday life and you think a mentor could be helpful, please contact the Macular Society Helpline on 0300 3030 111.

Other support services

Counselling

Are you dealing with the emotional challenges of macular disease? It can help to speak to a professional counsellor, who is trained to listen and to talk through your feelings and help you find ways of dealing with them. This service is for anyone who has been diagnosed with macular disease or their family members. Use our free service today.

Treatment buddies

We can put you in touch with someone who’s had treatment for macular disease, to answer your questions and put your mind at rest.