Penny Rome smiling

"I didn't know if my hallucinations were a manifestation of my grief"

Posted: Thursday 16 November 2023

Seeing frightening faces in her own home was the reality for Penny, who was trying to come to terms with her sight loss in the aftermath of losing her husband.

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Geraldine Kelley in garden

“You have to try and remain connected and appreciate what you’ve got”

Posted: Thursday 26 October 2023

With lots going on in her personal life in 2017 Geraldine admits she had little time to process the news that she had the early stages of age-related macular degeneration (AMD).

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Irene walking outside with stick

“My white cane is absolutely essential – I wouldn’t be without it”

Posted: Friday 13 October 2023

When Julia and Irene step out of their front doors, they do so with an air of confidence - and it’s all thanks to their white canes.

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Nick Lancaster smiling in hat and sun glasses. The National Lottery Community Fund Wales logo bottom right.

“I’ve learned all the skills that I need to try and live independently”

Posted: Wednesday 20 September 2023

When Macular Society volunteer Nick suddenly found himself unable to make a simple cup of tea, he knew he needed help to rediscover an independent life with sight loss.

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Ann Johnson with walker and Challenge t-shirt

Ann, 99, completes milestone walking marathon challenge

Posted: Thursday 24 August 2023

While we have seen our fair share of rain over the last few months, nothing could stand in the way of 99-year-old Ann who has completed her mammoth, walking marathon challenge.

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Jade Blackledge mid sky dive

Thrill seeker skydives from 14,000ft to Beat Macular Disease

Posted: Friday 18 August 2023

Thrill-seeker Jade can tick off a 14,000ft skydive from her adrenaline-fuelled bucket list after she fearlessly threw herself out of a plane, to beat macular disease.

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Jonathan Tear headshot

“It’s not about what you can’t do, but what you can do that matters”

Posted: Monday 17 July 2023

From working as a volunteer football coach at one of the Premier League’s top clubs to advising ministers at the heart of Government, Jonathan has never let Stargardt get in the way of his varied career.

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Jane Tidy laughing

"It's valuable to come together with people who understand what it is like"

Posted: Tuesday 27 June 2023

People living with punctate inner choroidopathy (PIC) will now benefit from a new condition-specific support group which has launched online.

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Louise smiling at the camera in  the woods holding a cane

“Sight loss does change your life, but it's not the end of your life”

Posted: Tuesday 27 June 2023

Receiving a diagnosis of macular disease can be overwhelming and bring about a whirlwind of emotions. But, with the right advice and support it is possible to overcome the emotional impact and continue to do the things you love.

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Stacy, son and dog sitting on sofa

“As a mother, it’s one of the hardest things to face”

Posted: Monday 19 June 2023

Ten-year-old Freddie was diagnosed with Stargardt - a rare form of macular disease last year, after teachers initially shared their concerns with his mum Stacy.

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Helen Volunteer

“The only skill you need is empathy”

Posted: Thursday 1 June 2023

A former ophthalmic nurse has spoken of her rewarding new role as a volunteer group leader for the Macular Society and the difference she’s making to people with macular degeneration.

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Matthew Stump

"It doesn’t matter how much I can see, it’s just about being able to compete"

Posted: Tuesday 16 May 2023

From pulling tractors weighing three tonnes, to throwing heavy barrels, 31-year-old Matt does not let his sight loss stand in his way as he continues to push the limits of human endurance.

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