Join an online community of people with the same type of macular disease as you
Age-related macular degeneration is the largest type of macular disease in the UK today but, there are other types of macular disease that affect people on a daily basis. These conditions are much rarer and it is unlikely that you will meet lots of other people living with the condition you may have.
The Macular Society has created a number of online condition-specific groups to offer peer support and information. The groups meet online once a month.
What are the groups for?
Macular Society peer support groups are attended by thousands of people every month with macular disease. People join the group to:
- Learn more about macular disease
- Connect with others who have macular disease
- Hear from leading clinicians, researchers and sight loss professionals
- Reduce feelings of isolation
- Exchange hints and tips about living with macular disease.
Online condition-specific groups
Our online condition-specific groups take place once a month via Zoom and registration is not required. Just click the link of the group you’d like to join at the time of the event and you will be taken straight into the meeting.
Best disease
Meets: last Monday of each month at 7pm
Diabetic macular oedema
Meets: third Wednesday of each month at 7pm
Myopic macular degeneration
Meets: second Tuesday of each month at 7pm
Sorsby’s fundus dystrophy
Meets: third Monday of each month at 7pm
Punctate inner choroidopathy (PIC)
Meets: third Monday of each month at 7pm
“I think just hearing their experiences, and obviously sharing yours, is vital for you to actually get past the stages that you go through when you get the condition. It helps you, and supports and guides you, to realise that there is a light at the end of the tunnel, that you can get past this, and that the condition isn’t everything about you; there’s so much more.”
For more information on any of the condition specific groups
Please contact Colin Daniels by email colin.daniels@macularsociety.org or 01603 937 449.
Looking for other support?
Support for you
We provide free information and support to those with macular disease, along with their family and friends, to help people keep their independence.
Local support groups
Our local support groups are for people of working age and older, and provide information, support and friendship to people with macular disease and sight loss.
Telephone befriending
If you feel isolated, our telephone befrienders can provide a regular friendly phone call. You can talk about living with macular disease, or not - the conversation is guided by you.
Are you a young person or of working age?
The Macular Society's Working Age and Young People's service supports people with macular disease who may not have reached retirement age.
Join our community at the Macular Society
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