Jan And Emma

“I wanted to do something to challenge myself”

Posted: Friday 31 March 2023

A grandmother of four with age-related macular degeneration (AMD) will be taking on her first-ever marathon this month, at the age of 70.

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"People don’t consider that there will be a life after diagnosis"

Posted: Wednesday 1 March 2023

Beverley has been a Macular Society counsellor for more than 20 years. In this time she has spoken to hundreds of people struggling to come to terms with the life-changing diagnosis of macular disease.

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Woman listening to audiobook while writing in book

Help abolish VAT on audiobooks

Posted: Wednesday 1 March 2023

An MP is leading a call in Parliament to abolish VAT on audiobooks, to support people with visual impairments.

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Rare Disease Day 2023: Gene-editing for Stargardt disease a ‘step in the right direction’

Posted: Tuesday 28 February 2023

A PHD student believes that new gene therapy technologies could at some point pave the way for a treatment or a cure.

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First-ever AMD audit highlights importance of regular injections

Posted: Monday 27 February 2023

The UK’s first-ever audit of hospital eye care services for patients with wet age-related macular degeneration (AMD) has confirmed regular injections help stabilise vision in most patients and early diagnosis and treatment are vital.

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First drug to treat dry AMD approved for use in US

Posted: Tuesday 21 February 2023

The first ever drug to treat dry age-related macular degeneration (AMD) has been approved for use in the US.

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Audrey Drage

“There’s a way around everything if you’re determined”

Posted: Friday 17 February 2023

Keen knitter Audrey has described achieving her proudest piece of work, as she has proved there is no reason to let her sight loss stand in the way of her passion.

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New genomic technique could transform diagnosis and treatment for rare eye disease

Posted: Wednesday 15 February 2023

Scientist Dr Gavin Arno and clinician Dr Siying Li from Moorfields Eye Hospital, will be revealing more details about a new genomic technique which could transform diagnosis and treatment for rarer types of inherited eye diseases.

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virtual eye

How could your data play a part in the future of eye care?

Posted: Thursday 2 February 2023

Dr Wen Hwa Lee, chief executive officer and chief scientist of charity Action Against AMD (AAAMD), has shared more about how your data could play a part in the future of eye care.

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Vera wearing a blue jumper standing in her garden

“I noticed when new people joined, they would come with so much fear in their eyes”

Posted: Wednesday 1 February 2023

Vera became a Macular Society group leader a few years after her late husband Peter was diagnosed with age-related macular degeneration (AMD).

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Cost of living– support for people with sight loss

Posted: Monday 30 January 2023

It can be a minefield trying to navigate the financial support available to you if you have a sight condition. However, the Macular Society’s Working Age and Young People’s Service manager, Colin Daniels, is here to help.

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Denise Lewis

"It's only now that I have seen the impact macular disease has on people"

Posted: Friday 20 January 2023

A retired ophthalmic nurse said it wasn’t until she began to volunteer with her local support group that she realised the true impact of macular disease and the impact it has on many people’s lives.

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