Latest news
Understanding the mysteries surrounding Charles Bonnet syndrome
Posted: Tuesday 22 August 2023
Why do some people with vision loss experience hallucinations, while others do not? That’s one of the areas being looked into as researchers aim to uncover some of the mysteries surrounding the condition Charles Bonnet syndrome (CBS).
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Thrill seeker skydives from 14,000ft to Beat Macular Disease
Posted: Friday 18 August 2023
Thrill-seeker Jade can tick off a 14,000ft skydive from her adrenaline-fuelled bucket list after she fearlessly threw herself out of a plane, to beat macular disease.
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Second drug for dry AMD becomes available in the US
Posted: Tuesday 8 August 2023
Another new drug to treat late-stage dry age-related macular degeneration (AMD) has been approved for use in the US.
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Consultation to close railway ticket office extended
Posted: Wednesday 26 July 2023
The consultation into the plan to close hundreds of ticket offices in England is set to be extended, following opposition from passengers and disability charities.
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'Inspiring' pop singer and Macular Society patron Vince Hill dies age 89
Posted: Monday 24 July 2023
Pop singer and Macular Society patron Vince Hill has died at the age of 89.
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“It’s not about what you can’t do, but what you can do that matters”
Posted: Monday 17 July 2023
From working as a volunteer football coach at one of the Premier League’s top clubs to advising ministers at the heart of Government, Jonathan has never let Stargardt get in the way of his varied career.
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Macular Society supports Edge Hill University's groundbreaking AMD research
Posted: Friday 7 July 2023
Macular Society Trustees have visited Edge Hill University’s labs to talk to its world-leading researchers on age-related macular degeneration (AMD).
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Respond to plans to axe majority of railway ticket offices
Posted: Friday 7 July 2023
A three-week consultation is underway to respond to plans to close railway ticket offices.
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New treatments go under the spotlight for 2023 conference
Posted: Thursday 29 June 2023
The first-ever treatment for dry age-related macular degeneration (AMD) will be one of the exciting topics under the spotlight at this year’s Macular Disease Conference – Hope for the Future.
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"It's valuable to come together with people who understand what it is like"
Posted: Tuesday 27 June 2023
People living with punctate inner choroidopathy (PIC) will now benefit from a new condition-specific support group which has launched online.
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“Sight loss does change your life, but it's not the end of your life”
Posted: Tuesday 27 June 2023
Receiving a diagnosis of macular disease can be overwhelming and bring about a whirlwind of emotions. But, with the right advice and support it is possible to overcome the emotional impact and continue to do the things you love.
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“As a mother, it’s one of the hardest things to face”
Posted: Monday 19 June 2023
Ten-year-old Freddie was diagnosed with Stargardt - a rare form of macular disease last year, after teachers initially shared their concerns with his mum Stacy.
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