Latest news
Daily tablet shows promise as first treatment for Stargardt disease
Posted: Monday 2 December 2024
A new drug for Stargardt disease, called gildeuretinol (ALK-001), has received special recognition from the Food and Drug Administration in the US, highlighting its potential to treat the condition.
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Your top tips for coping with sight loss at Christmas
Posted: Monday 2 December 2024
From writing Christmas cards to cooking Christmas dinner, the festive season can present lots of challenges if you are living with sight loss. We share your simple solutions, to overcome all the tricker tasks at this busy time of year.
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First-of-a-kind study shines light on DMO treatment among diverse backgrounds
Posted: Friday 29 November 2024
For the first time, people from underrepresented ethnic and racial backgrounds were the focus of a clinical trial which reported improved vision after receiving treatment for diabetic macular oedema (DMO).
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“Without counselling, I would have been left in the doldrums - I wasn't me anymore”
Posted: Thursday 28 November 2024
From nursery teaching to supporting people with dementia, Caroline had always associated herself as an outgoing and extraverted person - until her sight began to deteriorate.
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“Improving people’s quality of life with macular disease should be prioritised”
Posted: Tuesday 26 November 2024
Improving the quality of people’s lives with macular disease is the goal for a son who has completed a 30-mile walking challenge in memory of his dad.
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"My Mauna Kea challenge was nothing compared to living with sight loss"
Posted: Tuesday 26 November 2024
An avid cyclist has completed a mammoth challenge of cycling the height of the world’s tallest mountain, in memory of his late wife who spent decades living with a rare macular condition.
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Supplements offer hope for advanced AMD, says researcher
Posted: Monday 25 November 2024
Dr Tiarnan Keenan, a clinician scientist at the National Eye Institute in the US, shares groundbreaking insights into the benefits of AREDS2 supplements for people with geographic atrophy (GA), an advanced stage of dry age-related macular degeneration (AMD).
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"I see the floating heads of toothless, grinning medieval men"
Posted: Saturday 16 November 2024
Visions of medieval figures with open mouths and toothless grins have been some of the vivid images that Sheila started to see following her diagnosis of age-related macular degeneration (AMD).
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Charles Bonnet Syndrome Awareness Day 2024: Your experiences
Posted: Saturday 16 November 2024
Imagine spotting angels perched in trees, an infestation of flies, or even a familiar face from your past appearing in your living room.
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“I hope Archie will never have to worry about losing his sight”
Posted: Monday 11 November 2024
When Sian was first diagnosed with Best disease, a rare genetic eye condition, she was just a child. She barely remembers the details, only that she got a day off school and visited the Tower of London. Decades later, the condition she had almost forgotten about resurfaced - this time, affecting her young son, Archie.
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First UK hearing and sight loss survey launched
Posted: Thursday 7 November 2024
The first survey in the UK to collect data on vision and hearing loss has been launched. The UK National Eye Health and Hearing Study, aims to record data to inform the NHS and policymakers and is a collaboration between sensory loss charities, Anglia Ruskin University, eye and hearing care professionals and the public sector.
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NICE recommends new treatment for wet AMD
Posted: Tuesday 5 November 2024
A new treatment option for patients with wet age-related macular degeneration (AMD) is set to become available on the NHS in England.
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