Latest news
Treatment delays – “It’s vitally important to speak out”
Posted: Wednesday 5 April 2023
Stories of delays to vital treatment for age-related macular degeneration (AMD) have been hitting the headlines over the last few weeks. While the news is concerning for many people affected, Pam, who was diagnosed with wet AMD in 2021, has shared why she has spoken out about her own experiences to the national press and why she would encourage others to do the same.
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New drug for dry AMD - Syfovre: your questions answered
Posted: Tuesday 4 April 2023
In February we shared the exciting news that the first-ever drug to treat dry age-related macular degeneration (AMD) has been approved in the US. With the support of Apellis Pharmaceuticals, which has brought the drug to market, we answer some of your most frequently asked questions.
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Do you suffer from pain after your eye injection?
Posted: Monday 3 April 2023
While many people don’t experience any problems from their regular eye injections, there are a few others who have complained about pain or discomfort in the hours following the treatment.
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Changes to voting affecting blind and partially sighted people
Posted: Monday 3 April 2023
The local elections next month will be the first time people across the country will be asked to provide photo ID in order to vote.
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Workforce Census illustrates severe shortage of eye doctors
Posted: Friday 31 March 2023
The Macular Society has reacted with concern to The Royal College of Ophthalmologist’s 2022 Workforce Census, which reveals the shortage of eye doctors in the UK and the extent of pressure on NHS ophthalmology services.
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“I wanted to do something to challenge myself”
Posted: Friday 31 March 2023
A grandmother of four with age-related macular degeneration (AMD) will be taking on her first-ever marathon this month, at the age of 70.
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"People don’t consider that there will be a life after diagnosis"
Posted: Wednesday 1 March 2023
Beverley has been a Macular Society counsellor for more than 20 years. In this time she has spoken to hundreds of people struggling to come to terms with the life-changing diagnosis of macular disease.
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Help abolish VAT on audiobooks
Posted: Wednesday 1 March 2023
An MP is leading a call in Parliament to abolish VAT on audiobooks, to support people with visual impairments.
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Rare Disease Day 2023: Gene-editing for Stargardt disease a ‘step in the right direction’
Posted: Tuesday 28 February 2023
A PHD student believes that new gene therapy technologies could at some point pave the way for a treatment or a cure.
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First-ever AMD audit highlights importance of regular injections
Posted: Monday 27 February 2023
The UK’s first-ever audit of hospital eye care services for patients with wet age-related macular degeneration (AMD) has confirmed regular injections help stabilise vision in most patients and early diagnosis and treatment are vital.
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First drug to treat dry AMD approved for use in US
Posted: Tuesday 21 February 2023
The first ever drug to treat dry age-related macular degeneration (AMD) has been approved for use in the US.
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“There’s a way around everything if you’re determined”
Posted: Friday 17 February 2023
Keen knitter Audrey has described achieving her proudest piece of work, as she has proved there is no reason to let her sight loss stand in the way of her passion.
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