Join our macular disease research participant database primary image

Join our macular disease research participant database

Thank you for joining the fight to Beat Macular Disease. Across the UK, many clinical trials and research studies are working to find better treatments, and ultimately a cure for macular disease.

Researchers often contact the Macular Society for help finding participants. By joining our research participant database, you could contribute to breakthroughs by:

  • Sharing feedback on new developments
  • Joining surveys or focus groups
  • Taking part in macular disease clinical trials

Who can join?

Our research participant database is open to anyone in the UK with a macular disease diagnosis, as well as friends, family and carers who do not have the condition but want to support research.

How it works

When researchers approach us, we will review their study or clinical trial criteria and identify the most suitable participants. If you meet the requirements, we’ll provide you with the study details and the research team’s contact information, so you can decide whether to take part. If there are no current studies, or you don’t match the criteria, we may not contact you straight away.

Why we need your details

We collect personal details, including information on any retinal condition, and ethnicity, so we can assess your suitability for different trials. By providing this information, you consent to its use for research matching purposes. You can ask to be removed from the database at any time.

For researchers

If you are conducting a study and would like to recruit through our database, please email research@macularsociety.org.

Sign up and help shape the future of macular disease

Please note the Research Participant Database is for those living in the UK only.

Required fields are indicated by *

How are you affected by macular disease? *

Macular disease diagnosis

You have indicated you are living with the condition, please provide details on your diagnosis and which eyes are affected

Please select one or more from the following list.

You have indicated you are connected to someone with macular disease, please provide details on their diagnosis and which eyes are affected

Please select one or more from the following list.

Other retinal conditions

Do you experience Charles Bonnet syndrome (visual hallucinations due to sight loss)? *

Does the person you are connected to experience Charles Bonnet syndrome (visual hallucinations due to sight loss)? *

Contact details

(if applicable)

We would love to stay in touch

You're helping to Beat Macular Disease, thank you. We would also like to keep in touch about how you can get involved with fundraising, events, products we sell and how we campaign, using the details you've provided.

You can change what you receive from us at any time by contacting us. Read our privacy policy, which covers the ways that we gather, store, keep and use information about you.

Questions about research?

If you have any questions about taking part, you’d like to change what you receive from us, or if you no longer want to be involved, you can call us on 01264 560 227, email research@macularsociety.org, or you can write to us at: Research team, Macular Society, Crown Chambers, South Street, Andover SP10 2BN.