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Genetic counselling and how it helps you

Latest news, posted 2 September 2025

What role does genetics play in macular disease? And what is the role of a genetic counsellor? In a recent webinar, Eleanor Schiff, a genetic counsellor at Moorfields Eye Hospital, explained her role, why it’s important, and what families can expect if they decide to explore it.

Dealing with a diagnosis

Latest news, posted 3 September 2025

When you step out of the consultant’s office after being diagnosed with macular disease, it can feel quite overwhelming. Many people often can't quite remember what was said, and aren’t sure what you’re supposed to do if your eyesight gets worse. Our helpline team is here to make things clearer.

Q&A - your questions answered on the PRIMA System clinical trial for dry AMD

Latest news, posted 20 October 2025

All you need to know following the published results of Science Corporation's clinical trial to treat patients with late-stage dry age-related macular degeneration (AMD).

New stem cell trial offers potential cure for AMD

Latest news, posted 18 December 2015

Surgeons in London have carried out a pioneering human embryonic stem cell operation in an ongoing trial to find a cure for age-related macular degeneration.This first operation is a major milestone in the London Project to Cure Blindness, which was esta…

Health Talk seeks genomic research participants

Latest news, posted 1 February 2016

Health Talk, which provides free information about health issues by sharing people's real-life experiences, is looking to talk to people who have been invited to take part in the Genome 100,000 Project.

Statins could help prevent AMD

Latest news, posted 5 February 2016

New research has revealed that statins may prevent dry age-related macular degeneration (AMD).

Experiences of Personal Independence Payment on people with sensory impairments

Latest news, posted 9 February 2016

Researchers at NatCen Social Research are currently working on a project about the experiences of people with vision impairment and people with combined hearing and sight loss who have been claiming Disability Living Allowance (DLA) and who will apply fo…

Moorfields will highlight rare eye diseases as part of a global campaign

Latest news, posted 25 February 2016

Moorfields Eye Hospital is supporting a global awareness day, which highlights rare diseases and the impact they have on patients’ lives.

New study confirms prevalence of visual hallucinations in sight loss

Latest news, posted 29 February 2016

Optometrists and ophthalmologists are being urged to broaden their understanding of Charles Bonnet Syndrome (CBS), after a major study has backed up how commonly patients with severe vision loss experience it.The study by the Canadian National Institute …

Royal College of Ophthalmologists warns of eye risk from ‘overstretched NHS’

Latest news, posted 17 March 2016

Eye specialists have warned that hundreds of patients suffer irreversible sight loss every year in England because services are overstretched and under-resourced.