Online condition-specific groups

Age-related macular degeneration is the most common type of macular disease in the UK today but, there are other types of macular disease that affect people on a daily basis. These conditions are much rarer, so it can be difficult to meet other people living with the condition you may have.

The Macular Society has created a range of online condition-specific groups, providing a welcoming space for peer support, shared experiences and the latest information. The groups meet online once a month.

What are the groups for?

Macular Society peer support groups are attended by thousands of people every month with macular disease. People join the group to:

Learn more about macular disease
Connect with others who have macular disease
Hear from leading clinicians, researchers and sight loss professionals
Reduce feelings of isolation
Share practical tips for living with macular disease
Become part of a supportive community

Our condition-specific groups

Whether you've been recently diagnosed or have been living with your condition for some time, our online groups offer a chance to connect with others who understand. Find your condition below to see when the group meets.

Best disease

Meets: every second month on the last Monday of January, March, May, July, September and November at 7pm.

Diabetic macular oedema

Meets: third Wednesday of each month at 7pm

Myopic macular degeneration

Meets: second Tuesday of each month at 7pm

Sorsby’s fundus dystrophy

Meets: third Monday of each month at 7pm

“I think just hearing their experiences, and obviously sharing yours, is vital for you to actually get past the stages that you go through when you get the condition. It helps you, and supports and guides you, to realise that there is a light at the end of the tunnel, that you can get past this, and that the condition isn’t everything about you; there’s so much more.”

Shona, Member of the Diabetes-related sight loss support group

Find out more and join a group

Our online condition-specific groups take place once a month via Zoom.

To find out more about the Macular Society's condition-specific groups and how to join a meeting, please contact Colin Daniels, Service Innovation Manager at colin.daniels@macularsociety.org.