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Survey better understands patient experiences of macular treatment

Latest news, posted 5 March 2026

A survey to better understand the perceptions of patients receiving anti-VEGF injections for macular conditions has highlighted the positive experiences of care, but also the need to involve patients in decisions about their treatment.

Q&A: How the ECLO service helps people with sight loss

Latest news, posted 13 March 2026

Eye clinic liaison officers (ECLOs) play a vital role signposting patients to information and the support available. We spoke to Moorfields Eye Hospital ECLO Mary Bortolussi about the impact the role can have on people living with sight loss.

“I’m not just running for myself, but for the Macular Society and others with macular disease”

Latest news, posted 31 March 2026

When Lucy was diagnosed with macular oedema four years ago she feared she wouldn’t be able to enjoy life in the way she could before.

Could a Parkinson's drug reduce the frequency of injections for wet AMD?

Latest news, posted 8 April 2026

Researchers at Queen's University Belfast are launching a new trial to look at whether L-DOPA, a drug currently used to treat Parkinson's disease, could help people living with wet age-related macular degeneration (AMD).

“If you’re informed then you’re not frightened - that’s half the battle”

Latest news, posted 11 May 2026

Former ophthalmic nurse Regan was diagnosed with age-related macular degeneration (AMD) three years ago, having spent her career helping people with visual impairments.

“I've run one of the greatest marathons in the world and for such an incredible cause”

Latest news, posted 5 May 2026

Overwhelming emotions met the 2026 London Marathon runners, who raised awareness of macular disease as well as tens of thousands of pounds for research and support.

Take control of your mental health

Latest news, posted 1 May 2026

Being diagnosed with macular disease can affect more than just your sight. Many people often underestimate the impact that living with a degenerative eye condition can have on your emotional well-being too. As Mental Health Awareness Week approaches (11-17 May 2026) we revisit some of the top tips from Suzanne Roberts, one of the Macular Society’s counsellors on how to cope with the emotional impact of sight loss.

“Age is no barrier and nor is a macular condition”

Latest news, posted 6 May 2026

Rowing didn’t enter Roger’s life until his late 50s, but now aged 81 and living with macular disease, he is a three-time indoor rowing world champion. 

Tributes paid to Macular Society president and founding member

Latest news, posted 7 May 2026

The Macular Society is deeply saddened to announce the death of our president Mr Timothy ffytche who was also one of the organisation’s founding members.

"I am positive and won't let it have a detrimental impact on my life"

Latest news, posted 29 May 2026

A 27-year-old veterinary student has shaved off her hair to raise funds for macular research after being told she would lose her sight to Doyne honeycomb dystrophy.