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News and updates
Stay informed with the latest breakthroughs in macular research, emerging treatments for sight loss, and inspiring stories from the people we support. Browse our most recent news and insights below—and sign up to our free monthly enewsletter to never miss an update.
“If you’re informed then you’re not frightened - that’s half the battle”
Posted: Monday 11 May 2026
Former ophthalmic nurse Regan was diagnosed with age-related macular degeneration (AMD) three years ago, having spent her career helping people with visual impairments.
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“I've run one of the greatest marathons in the world and for such an incredible cause”
Posted: Tuesday 5 May 2026
Overwhelming emotions met the 2026 London Marathon runners, who raised awareness of macular disease as well as tens of thousands of pounds for research and support.
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“I’m not just running for myself, but for the Macular Society and others with macular disease”
Posted: Tuesday 31 March 2026
When Lucy was diagnosed with macular oedema four years ago she feared she wouldn’t be able to enjoy life in the way she could before.
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"When you know you can help people, it gives you a buzz"
Posted: Saturday 28 February 2026
Peter has lived with a rare sight loss condition most of his life, but until a few years ago had never met another person living with it. In November 2022 a chance encounter changed all that, leading him on a journey to help others with Stargardt disease.
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“I want to enjoy this sport for as long as I can”
Posted: Friday 30 January 2026
Paul never imagined padel would become his favourite sport. But now the Welshman represents his country in tournaments for the over 60s, even as his vision has declined.
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Grandsons cycle 44km for grandma, raising £1,000 to Beat Macular Disease
Posted: Friday 19 December 2025
A grandmother has spoken of her pride after her grandsons, aged just 10 and 12 cycled more than 40km to raise more than £1,000 for macular research on her behalf.
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Macular disease Christmas tree rounds off church’s 2025 fundraising
Posted: Friday 19 December 2025
A Christmas tree with a difference has rounded off a church community’s year of fundraising - putting macular disease in the spotlight.
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“I couldn’t understand why other people weren’t seeing what I was seeing”
Posted: Sunday 16 November 2025
Being the only person to see kittens climbing out of her TV, trees growing inside her house and people sat in her bedroom was an alarming experience for Janet after she was diagnosed with age-related macular degeneration.
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“I get both joy and comfort from painting as someone with a visual impairment”
Posted: Thursday 4 September 2025
Having been forced into early retirement, John has always been determined not to be beaten by macular disease. His career as a civil engineer may have been over sooner than planned, but he has since rediscovered his passion for painting.
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“We’re fundraising because we want more people to know about macular disease”
Posted: Wednesday 3 September 2025
A father and daughter will be running the Great North Run together to raise awareness of macular disease and funds to find a cure.
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“If I can help somebody with macular disease, then that’s my legacy”
Posted: Monday 4 August 2025
Chris has three simple hopes for the future: to continue be able to read for as long as possible, to keep running while his sight still allows him and to welcome new treatments or even a future cure for macular disease.
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"I was determined to get help for my mum"
Posted: Wednesday 28 May 2025
When Ruth was diagnosed with age-related macular degeneration (AMD) last year, it was her daughter Ann who saw it as her mission to find her mum much needed support.
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