Latest news
News and updates
Stay informed with the latest breakthroughs in macular research, emerging treatments for sight loss, and inspiring stories from the people we support. Browse our most recent news and insights below—and sign up to our free monthly enewsletter to never miss an update.
“I wanted to know what I could do to try and help myself”
Posted: Monday 3 February 2025
Claire found herself “alone and lost” as she tried to come to terms with her Stargardt diagnosis, not knowing anybody else with the rare form of sight loss.
Find out more
Finding joy after a diagnosis
Posted: Friday 31 January 2025
Losing their sight changed Dawn and Chris’ lives, but it didn’t stop them from finding enjoyment in the every day. In the latest My Macular and Me podcast, they share how new hobbies, support from others, and a positive mindset helped them find joy after their diagnoses.
Find out more
"Without speaking a word, my cane tells my story”
Posted: Friday 31 January 2025
For Rita, a simple white stick helped her overcome her embarrassment of losing her sight and helped her communicate her sight loss to others.
Find out more
Syfovre FAQs and next steps for dry AMD and geographic atrophy treatment
Posted: Thursday 30 January 2025
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) decision to reject the first potential treatment for geographic atrophy (GA), or late-stage age-related macular degeneration (AMD) is undoubtedly a disappointing one for those living with the condition. But, what does the decision mean? We answer your questions.
Find out more
First treatment for late-stage dry AMD rejected by UK drug regulator
Posted: Wednesday 22 January 2025
The first potential treatment for geographic atrophy (GA) or late stage dry aged-related macular degeneration has been rejected by the Medicines and Healthcare products Regulatory Agency (MHRA).
Find out more
How artificial intelligence is transforming eye care
Posted: Thursday 9 January 2025
Artificial intelligence (AI) is already part of our daily lives, but how is it changing healthcare? In a recent webinar hosted by Macular Society partner OcuPlan Dr James Neffendorf, an eye specialist at King’s College Hospital and ophthalmic surgeon Dan Calladine, explored how AI is transforming the way eye care is delivered and how it is improving outcomes for patients.
Find out more
"Volunteering makes me feel worthwhile, I just love helping other people"
Posted: Wednesday 8 January 2025
In 2025, Jenny will have spent 16 years helping out at her local support group for people with macular disease. While she doesn’t have sight loss herself, she joined to follow in the footsteps of her late husband Alan who was a group volunteer.
Find out more
Headset allows visually impaired football fan to watch games
Posted: Wednesday 8 January 2025
Crystal Palace Football Club has become the first to offer visually impaired fans access to a headset that allows them to watch live games more easily and stay involved with their team.
Find out more
“Counselling helped me express all the guilt”
Posted: Tuesday 7 January 2025
For two decades Jane has been dedicated to supporting her husband Ed since his diagnosis with macular disease. While she has always been firmly by his side, Jane admitted she has often felt a great sense of guilt – a feeling which resonates with many friends, family members or carers of people living with sight loss.
Find out more
New recipes to promote good eye health
Posted: Tuesday 7 January 2025
As part of a new collaboration the Macular Society has partnered with MACU-SAVE GOLD+ to launch a series of easy-to-follow, healthy recipes, full of ingredients that are good for your eyes.
Find out more
Architecture graduate with Stargardt wants to make buildings more inclusive
Posted: Monday 2 December 2024
A recent architecture graduate who is losing her sight to Stargardt disease, says the experience has motivated her to design everyday spaces that are accessible to everyone.
Find out more
Daily tablet shows promise as first treatment for Stargardt disease
Posted: Monday 2 December 2024
A new drug for Stargardt disease, called gildeuretinol (ALK-001), has received special recognition from the Food and Drug Administration in the US, highlighting its potential to treat the condition.
Find out more
Get the latest news and advice from the Macular Society
To hear about life-changing research, treatments and tips for living with sight loss, subscribe to our monthly enewsletter today. Together we can Beat Macular Disease.
Sign up to our free email newsletter