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News and updates
Stay informed with the latest breakthroughs in macular research, emerging treatments for sight loss, and inspiring stories from the people we support. Browse our most recent news and insights below—and sign up to our free monthly enewsletter to never miss an update.
“If you’re informed then you’re not frightened - that’s half the battle”
Posted: Monday 11 May 2026
Former ophthalmic nurse Regan was diagnosed with age-related macular degeneration (AMD) three years ago, having spent her career helping people with visual impairments.
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Tributes paid to Macular Society president and founding member
Posted: Thursday 7 May 2026
The Macular Society is deeply saddened to announce the death of our president Mr Timothy ffytche who was also one of the organisation’s founding members.
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“Age is no barrier and nor is a macular condition”
Posted: Wednesday 6 May 2026
Rowing didn’t enter Roger’s life until his late 50s, but now aged 81 and living with macular disease, he is a three-time indoor rowing world champion.
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“I've run one of the greatest marathons in the world and for such an incredible cause”
Posted: Tuesday 5 May 2026
Overwhelming emotions met the 2026 London Marathon runners, who raised awareness of macular disease as well as tens of thousands of pounds for research and support.
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Take control of your mental health
Posted: Friday 1 May 2026
Being diagnosed with macular disease can affect more than just your sight. Many people often underestimate the impact that living with a degenerative eye condition can have on your emotional well-being too. As Mental Health Awareness Week approaches (11-17 May 2026) we revisit some of the top tips from Suzanne Roberts, one of the Macular Society’s counsellors on how to cope with the emotional impact of sight loss.
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Could a Parkinson's drug reduce the frequency of injections for wet AMD?
Posted: Wednesday 8 April 2026
Researchers at Queen's University Belfast are launching a new trial to look at whether L-DOPA, a drug currently used to treat Parkinson's disease, could help people living with wet age-related macular degeneration (AMD).
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“I’m not just running for myself, but for the Macular Society and others with macular disease”
Posted: Tuesday 31 March 2026
When Lucy was diagnosed with macular oedema four years ago she feared she wouldn’t be able to enjoy life in the way she could before.
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Q&A: How the ECLO service helps people with sight loss
Posted: Friday 13 March 2026
Eye clinic liaison officers (ECLOs) play a vital role signposting patients to information and the support available. We spoke to Moorfields Eye Hospital ECLO Mary Bortolussi about the impact the role can have on people living with sight loss.
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“I’m convinced there will be a potential cure in the future”
Posted: Thursday 5 March 2026
Alan thought he just needed a new pair of glasses after he noticed something different about his vision while he was driving. He kept blinking thinking it would go away, but soon learnt this was something he would have to live with as he was diagnosed with age-related macular degeneration (AMD).
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Survey better understands patient experiences of macular treatment
Posted: Thursday 5 March 2026
A survey to better understand the perceptions of patients receiving anti-VEGF injections for macular conditions has highlighted the positive experiences of care, but also the need to involve patients in decisions about their treatment.
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Chef with Stargardt launches new cookbook for people with sight loss
Posted: Wednesday 4 March 2026
A chef with Stargardt disease has written a new cookbook designed to make cooking accessible for anyone living with sight loss.
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"When you know you can help people, it gives you a buzz"
Posted: Saturday 28 February 2026
Peter has lived with a rare sight loss condition most of his life, but until a few years ago had never met another person living with it. In November 2022 a chance encounter changed all that, leading him on a journey to help others with Stargardt disease.
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