Latest news
Mum takes macular disease fight into the boxing ring
Posted: Wednesday 23 March 2022
A mother of two spent 12 weeks transforming from her profession as an ice cream seller into a boxer, as she staged her own fight against macular disease.
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Employment and sight loss - tips and advice for jobseekers
Posted: Wednesday 9 March 2022
While it can take someone who is visually impaired twice as long to find work, employment advisors have shared their tips for jobseekers with sight loss.
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New support group offers a chance to share experience and information
Posted: Thursday 3 March 2022
A new support group for people living with Sorsby Fundus Dystrophy has been welcomed by patients living with the condition.
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'Get technically savvy' – top advice from people living with macular disease
Posted: Thursday 3 March 2022
Three people who have been living with macular disease for more than 10 years have shared their top pieces of advice for others receiving a diagnosis.
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Researchers call for support from patients
Posted: Tuesday 1 March 2022
Researchers are looking for patients with wet and dry age-related macular degeneration (AMD) to take part in two separate studies.
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Genetic researcher shines spotlight on ‘first of its kind’ project for Rare Disease Day
Posted: Friday 25 February 2022
Genetic researcher Dr Jamie Ellingford will be revealing all about his latest research, which hopes to find answers to why people develop macular dystrophies.
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Campaign urges NHS Trusts to improve communication with sight loss patients
Posted: Wednesday 23 February 2022
A coalition of charities, including the Macular Society, is calling for urgent, simple steps to be taken following a review of the NHS's Accessible Information Standard (AIS) so all patients receive the same quality of care.
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'Without the befriending service, it would be very depressing for so many people'
Posted: Friday 11 February 2022
At 98 years of age, Barbara Hogg is showing no signs of slowing down in her role as a befriender.
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Ways you can Beat Macular Disease
Posted: Thursday 3 February 2022
There are lots of ways you can help Beat Macular Disease, but many you may not have considered. Find out what you can do to help find a cure.
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Living with macular disease and its emotional impact the focus of February webinars
Posted: Thursday 3 February 2022
Our regular webinars return in February, focusing on people’s experiences of living with macular disease and the wider emotional impact of sight loss.
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New drug for AMD and diabetic macular oedema approved by the FDA
Posted: Wednesday 2 February 2022
A new longer-lasting treatment for two types of macular disease, Faricimab, has been approved by the US Food and Drug Administration (FDA).
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Jazz singer to complete Winter Warmer lineup
Posted: Wednesday 2 February 2022
A jazz musician who was diagnosed with Stargardt disease at eight years old will conclude this year’s series of Winter Warmer calls, which have provided comfort, friendship and entertainment during the long winter nights.
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