Chris and Kathryn Owen smiling at camera

Step Around the World challenge continues to fund vital macular research

Posted: Thursday 24 March 2022

More than 100 people signed up to our Step Around the World (from home) challenge since it launched last year, raising thousands of pounds for vital research for people living with macular disease.

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Michael Everest (dad, has wet AMD) and Gemma Everest (daughter)

Mum takes macular disease fight into the boxing ring

Posted: Wednesday 23 March 2022

A mother of two spent 12 weeks transforming from her profession as an ice cream seller into a boxer, as she staged her own fight against macular disease.

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office desk with document and laptop

Employment and sight loss - tips and advice for jobseekers

Posted: Wednesday 9 March 2022

While it can take someone who is visually impaired twice as long to find work, employment advisors have shared their tips for jobseekers with sight loss.

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Sue Sorsby headshot

New support group offers a chance to share experience and information

Posted: Thursday 3 March 2022

A new support group for people living with Sorsby Fundus Dystrophy has been welcomed by patients living with the condition.

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Male and female using tablet smiling

'Get technically savvy' – top advice from people living with macular disease

Posted: Thursday 3 March 2022

Three people who have been living with macular disease for more than 10 years have shared their top pieces of advice for others receiving a diagnosis.

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Scientist in laboratory with test tube

Researchers call for support from patients

Posted: Tuesday 1 March 2022

Researchers are looking for patients with wet and dry age-related macular degeneration (AMD) to take part in two separate studies.

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Dr Jamie Ellingford

Genetic researcher shines spotlight on ‘first of its kind’ project for Rare Disease Day

Posted: Friday 25 February 2022

Genetic researcher Dr Jamie Ellingford will be revealing all about his latest research, which hopes to find answers to why people develop macular dystrophies.

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Patient and consultant

Campaign urges NHS Trusts to improve communication with sight loss patients

Posted: Wednesday 23 February 2022

A coalition of charities, including the Macular Society, is calling for urgent, simple steps to be taken following a review of the NHS's Accessible Information Standard (AIS) so all patients receive the same quality of care.

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Barbara Hogg

'Without the befriending service, it would be very depressing for so many people'

Posted: Friday 11 February 2022

At 98 years of age, Barbara Hogg is showing no signs of slowing down in her role as a befriender.

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Kids playing with scientific models

Ways you can Beat Macular Disease

Posted: Thursday 3 February 2022

There are lots of ways you can help Beat Macular Disease, but many you may not have considered. Find out what you can do to help find a cure.

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Man on phone counselling

Living with macular disease and its emotional impact the focus of February webinars

Posted: Thursday 3 February 2022

Our regular webinars return in February, focusing on people’s experiences of living with macular disease and the wider emotional impact of sight loss.

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Eye exam patient

New drug for AMD and diabetic macular oedema approved by the FDA

Posted: Wednesday 2 February 2022

A new longer-lasting treatment for two types of macular disease, Faricimab, has been approved by the US Food and Drug Administration (FDA).

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